From my blog April 15th.......................
I just spoke to Aly and his potassium is down to 4 - the high end of normal but at least it IS in normal range - He had a good night but Aly said he had the nurses laughing in the night, they lightened his sedation to move him a bit and allow him to move his muscles himself so he didnt get sore or stiffen up ............. LOL Only this is Charlie remember.......... he didnt just move 'a little' he flipped himself over on all 4's & tried to escape from the bed an pull all his tubes out !
LOL n then when they tried tried to turn him back over he fought back & wouldnt lie down again till they put his sedation back up! - Aly said the nurse met her & Chris at the door laughing and said "you didnt warn us how strong this little one was........... it took 4 nurses & an intern to hold him down and distract him while the full sedation kicked back in!"
hehe he's charming the nurses even tho hes sedated - they do a lovely thing at Pendlebury........ whenever a nurse enters the room before they speak to ANYONE else in the room they go over to Charlie, touch him and say "Hello Charlie, my name is (whatever it is) and I'm a nurse, I'm going to help Mummy & Daddy look after you today".............. or if they go out of the room & come back they go over & say "Hi Charlie, its (xxx) I've come back to look after you again" - and every time they do, our little charmer smiles at them or flickers his eyelids or moves his hand, which they think is lovely cos he is responding to them.I was realy impressed with that cos it makes sure that Charlie hears voices talking TO him, not just ABOUT him, n I love that they talk to him first cos then he knows the voice right away.
Anyways got to go, got to go see the vampire myself now, going to pick her brains about Charlie while I'm there too,.
